Early on as a new mother, I felt that my kid was harder to parent than other kids. I would share my woes with other new moms, and while they seemed to appreciate my struggles, they never shared simliar experiences. Or the experiences they did share just didn't seem as bad. And while sometimes, I can be pretty self-consumed and can't see things as they truly are, my child did seem more difficult than other kids.
As Builder Boy got older, the struggles got harder. Being able to converse, even early on with just one or two syllables, brought new complexities to managing his behaviors. I would talk to friends and practically beg them for answers, ways that would transform our home into a peaceful and joyful place. Friends would give suggestions, ways that worked with their kids, that their doctors had told them, things they read in books and magazines...I would listen to them all and murmur thanks, but deep inside, I knew they wouldn't work. Sometimes, I would try their ideas and they would fail miserably. If I would tell them that things hadn't worked, I would instantly hear the message, "You have to be consistent!" If I told them I didn't want to try because I knew it wouldn't work, friends would act like I didn't want to put the effort in. All along, I kept saying, "But he's not textbook. He never fits into that textbook mold." And he didn't. And he doesn't. Textbook answers didn't fit this unique and challenging little boy.
About a year ago, we took Builder Boy to see a pyschologist. He just wasn't a happy child. He tended towards moody and crabby instead of giggly and joyful. We were worried that something was wrong and we wanted to be pro-active if it was something. After three visits, the diagnosis was shyness and anxiety caused by the shyness. The treatment? A rewards chart.
Like every other time that we have tried a rewards chart, it failed. Builder Boy had little interest in it. After a couple of weeks, we all forgot about it. So there we were, back to square one. Around this time, my father had his two massive strokes and the following months became about him and helping my mom out.
We thought all was well with Builder Boy and we could manage his behavior, but we were living in denial. He just wasn't "normal." His moods, his reactions, his general disposition were all so extreme. So after a long summer, we had him tested for autism. I expected the diagnosis to come to me something like this, "Blah blah blah (insert psycho babble here)...He is autistic..." OR "blah blah blah (insert psycho babble here) He is NOT autistic." We all kind of felt that he wasn't, or if he was, it was very high functioning autism and therefore would be easier to manage. Instead, we received a report from the psychologist stating that he might have autism, he might not (they still needed to rule it out), but he did have a disorder known as Oppositional Defiant Disorder, or ODD.
HUH?
So we embarked on a new journey of researching, and reading, and talking with friends and family, to try and figure out if A. We understood this disorder, B. we bought into this as a disorder (because truly, we're ALL oppositionally defiant on any given day!), and C. we thought Builder Boy actually had this disorder. This journey is still in its early stages. I do understand the disorder for the most part, I believe that Builder Boy does exhibit signs of it, and I guess it is an actual disorder.
I am angry. I am ticked. The more I read, the more angry and pissed I become. Heck, the more oppositional I become, I guess. Our insurance does not cover the treatment/therapy, so I have to go through our county services, which is its own angry post.
I have been writing this post for months now and just can't seem to make it want I want. So, I'm posting it now with the understanding that I will write much more on this. I have so much to say and I can't keep it in anymore. I know this is not life-threatening, I know that we can make it through this, and I know we are so blessed to have this be our problem when so many people deal with so much more, but I am still angry. We have suffered through our infertility and now this? We struggle on so many levels, and now we're going to add this? Can I catch a freaking break already?
So, thank you for your kind words and supportive thoughts on this post and the posts to come. I thank you for understanding that I need to write about all of it to work through it even if I sometimes sound like a horrible mother. I'm not going for popularity with these posts-I'm going for catharsis. It might not be pretty, but it will be out there and I will be dealing with it.
So there it is...the next part of this giant black cloud that follows me around.